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On death and dying - 8/4/2010 9:43:19 AM   
StrangerThan


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I've watched a lot of older folks die. Not nearly as many as doctors and nurses, but coming from a large family, it has been a fact of life. To give some perspective, I remember my great-great-grandmother, 5 greats, all my grandparents, their sisters, brothers.. well you get the picture. Most passed from old age, I reckon, a couple from cancer, another one from heart problems. Even so, we're talking upper 70's to upper 90's as the age ranges.

In the past couple of weeks, we've had two deaths in the family, a grandparent, a great-uncle. I don't know if I've just been blind in the past, but in witnessing the decline of these last two, a large number of similarities sprang to mind that cover the final few days. The final passing was presaged by the same types of care in many cases, that being hospice.

I'm not going to go into great detail, nor am I questioning the care itself, it just struck me that part of the process of providing comfort for the final days is sorta what actually kills the patient. Hospice folk provide good care. They can tell within hours of when someone will pass. But... part of the care is termed comfort. That has generally meant, at least from what I've seen in my own family, drugs to ease the pain, and foregoing things like food and water. Most couldn't eat if they tried. Most are unconscious. But seems to me the lack of fluid is the actual killer. Face it, take water away and people die within a week or two.

The thought surfaces if these are reallly the stages of natural death or in actuality, the stages of dying from thirst. From that springs another side issue, that of assisted suicide. At least one state, Oregon, has legislation on the books that will allow an otherwise competant person of sound mind who is terminally ill, to have some say in the timing and nature of their death. There are plenty of arguments pro and con, but having watched this enough times, I'm pretty much on the pro side.

I'm interested in comments from those in the health care field because it seems to me the role of the care provider in the last few days is both to provide comfort, but also maybe, hasten death? That's a bad way of putting it but the emperical evidence seems to suggest it. Then again, although I know what I see, I have little knowledge as to how that breaks down in terms of natural things.

I'm not looking for arguments, but more so an understanding.

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RE: On death and dying - 8/4/2010 9:53:39 AM   
FelineFae


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i can't answer your questions, but i'm sorry for your losses.

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RE: On death and dying - 8/4/2010 10:22:41 AM   
splorff


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I strongly disagree with withholding food and water. Just because someone appears to be unconscious, it does not follow that they are.

A woman in the UK was anaethetised and then they began her surgery. She experienced the whole thing, but was not able to move or speak. She was disbelieved until she told them their entire conversation throughout her ordeal.

She was able to wiggle her toes. She heard the surgeon say that she should not have been able to do that, but the anaethetist closed him down. It must have been awful for her.

Now try and imagine the agony of dying of thirst while you are somehow conscious.

In the UK, they put a sign upon the bed which says : nil by mouth. This means you are targeted for no water and no food. I too would like to see some medical responses. I can see no reason for it apart from it saves nurses bothering with feeding and bed pans. If that is what it really is about, I think it's shameful.


quote:

ORIGINAL: StrangerThan

I've watched a lot of older folks die. Not nearly as many as doctors and nurses, but coming from a large family, it has been a fact of life. To give some perspective, I remember my great-great-grandmother, 5 greats, all my grandparents, their sisters, brothers.. well you get the picture. Most passed from old age, I reckon, a couple from cancer, another one from heart problems. Even so, we're talking upper 70's to upper 90's as the age ranges.

In the past couple of weeks, we've had two deaths in the family, a grandparent, a great-uncle. I don't know if I've just been blind in the past, but in witnessing the decline of these last two, a large number of similarities sprang to mind that cover the final few days. The final passing was presaged by the same types of care in many cases, that being hospice.

I'm not going to go into great detail, nor am I questioning the care itself, it just struck me that part of the process of providing comfort for the final days is sorta what actually kills the patient. Hospice folk provide good care. They can tell within hours of when someone will pass. But... part of the care is termed comfort. That has generally meant, at least from what I've seen in my own family, drugs to ease the pain, and foregoing things like food and water. Most couldn't eat if they tried. Most are unconscious. But seems to me the lack of fluid is the actual killer. Face it, take water away and people die within a week or two.

The thought surfaces if these are reallly the stages of natural death or in actuality, the stages of dying from thirst. From that springs another side issue, that of assisted suicide. At least one state, Oregon, has legislation on the books that will allow an otherwise competant person of sound mind who is terminally ill, to have some say in the timing and nature of their death. There are plenty of arguments pro and con, but having watched this enough times, I'm pretty much on the pro side.

I'm interested in comments from those in the health care field because it seems to me the role of the care provider in the last few days is both to provide comfort, but also maybe, hasten death? That's a bad way of putting it but the emperical evidence seems to suggest it. Then again, although I know what I see, I have little knowledge as to how that breaks down in terms of natural things.

I'm not looking for arguments, but more so an understanding.

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RE: On death and dying - 8/4/2010 10:23:49 AM   
sub4hire


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I too have watched a great many people pass away in my lifetime.  For me it started early.  Now as I age the deaths are actually decreasing I've only been to 328 funerals in my lifespan.  The number actually has greatly diminished in the last few years.

Or maybe I should say not grown quickly. 

You only go into hospice when there is no other hope.  You already know that.  Hospice is basically to drug you up so your relatives feel you aren't in pain in your final moments.  Unfortunately in order to do that you have already left.  You don't remember who you are or where you are when you are under the influence of so many drugs. 

In any event.  When my father in law died a few years back.  We put him in hospice care.  I was the outsider and the one fighting for him.  I really don't know if he wanted someone to fight for him or not.  He had lost his ability to communicate.  In any event I felt like I was some outsider loon wanting him to stick around a bit longer.
It is the first time I ever saw hospice give us a book.  Basically it was on dying.  I still have it somewhere.
It basically said the body goes through certain phases to death.  Opened my eyes watching my mother die.  Signs I could have looked out for.

Basically my mother stopped eating and drinking.  I was on her daily to eat anything.  She would say I'm not hungry and naturally being her daughter I'd fight back.  You've got to eat. 
Well one of the phases is emptying out the body, preparing it for death.  Not eating nor drinking.  I've watched countless people die over the years.  All who have been sick for any real length of time stop eating and drinking on their own.  Hospice doesn't do that for them. 

I don't know if hospice hastens death.  For me it has always given me time to call loved ones to say goodbye.  Everyone imagines that once death happens that person is no longer there.  Hospice gives us a warm body to say goodbye to, so many people need that. 
As for my father in law.  It wasn't hospice either it was cutting off dialysis.  I was not disagreeing with the rest of the family.  He was beyond hope.  I wanted to take him home to die.  I was told over and over he would have a good 6 month's of hospice left and how we could not take care of him on his own..blah..blah.  Anyway we got a call less than 24 hours after being put into hospice that he had passed.  Not twenty minutes after we left him for the last time. 
I think once you see so much death you kind of get an idea or know what to look for.  You know when death is near. 

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RE: On death and dying - 8/4/2010 10:26:06 AM   
sub4hire


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From hospice

Signs of the preactive phase of dying:
  • increased restlessness, confusion, agitation, inability to stay content in one position and insisting on changing positions frequently (exhausting family and caregivers)
  • withdrawal from active participation in social activities
  • increased periods of sleep, lethargy
  • decreased intake of food and liquids
  • beginning to show periods of pausing in the breathing (apnea) whether awake or sleeping
  • patient reports seeing persons who had already died
  • patient states that he or she is dying
  • patient requests family visit to settle "unfinished business" and tie up "loose ends"
  • inability to heal or recover from wounds or infections
  • increased swelling (edema) of either the extremities or the entire body
Signs of the Active Phase of Dying
  • inability to arouse patient at all (coma) or, ability to only arouse patient with great effort but patient quickly returns to severely unresponsive state (semi-coma)
  • severe agitation in patient, hallucinations, acting "crazy" and not in patient's normal manner or personality
  • much longer periods of pausing in the breathing (apnea)
  • dramatic changes in the breathing pattern including apnea, but also including very rapid breathing or cyclic changes in the patterns of breathing (such as slow progressing to very fast and then slow again, or shallow progressing to very deep breathing while also changing rate of breathing to very fast and then slow)
  • other very abnormal breathing patterns
  • severely increased respiratory congestion or fluid buildup in lungs
  • inability to swallow any fluids at all (not taking any food by mouth voluntarily as well)
  • patient states that he or she is going to die
  • patient breathing through wide open mouth continuously and no longer can speak even if awake
  • urinary or bowel incontinence in a patient who was not incontinent before
  • marked decrease in urine output and darkening color of urine or very abnormal colors (such as red or brown)
  • blood pressure dropping dramatically from patient's normal blood pressure range (more than a 20 or 30 point drop)
  • systolic blood pressure below 70, diastolic blood pressure below 50
  • patient's extremities (such as hands, arms, feet and legs) feel very cold to touch
  • patient complains that his or her legs/feet are numb and cannot be felt at all
  • cyanosis, or a bluish or purple coloring to the patients arms and legs, especially the feet and hands)
  • patient's body is held in rigid unchanging position
Although all patients do not show all of these signs, many of these signs will be seen in some patients. The reason for the tradition of "keeping a vigil" when someone is dying is that we really don't know exactly when death will occur until it is obviously happening. If you wish to "be there" with your loved one when death occurs, keeping a vigil at the bedside is part of the process.

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RE: On death and dying - 8/4/2010 11:20:29 AM   
juliaoceania


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I helped to care for my stepfather for the last couple of years of his life. He had COPD, emphysema, had a stroke and was clinically dead for 15 minutes which made him blind and brain damaged. He would have panic attacks because he was blind which made him anxious. He was wheelchair bound and on oxygen.

Basically, he was a full time job for two people and my son even helped out with him. Our family took care of him because my mom couldn't bare the idea of a nursing home. The cheer and humor he bore his illness with deeply impacted my life. He and I did not get along when before his stroke, but he relied heavily on me afterwards. I came to realize he really loved me, he asked for me, not his own daughters. And after he died his daughters told me how much he admired me (although he never wanted to admit it). Because of his illness I quit smoking, and it is why I am so militantly against cigarettes.

He started failing the last couple of months he was home. He had bouts with pneumonia, and he was able to stand, but all of the sudden he was too weak too. This meant we could not bath him or take him to the bathroom. Neither my mom nor I were strong enough to lift him, nor set up for that level of care. I began to talk to my mom about putting him back in a nursing home, because we could not do it anymore. It was as we were looking around for the right place that he got sick for the last time. They gave him a morphine drip to "ease his pain", basically to help him pass on. He was not supposed to live more than a month because of his heart stopping for so long and his other medical issues. He lived over two more years. I am grateful for them, even though after he passed the three of us went into a deep depression over it. I always thought it was because we kept him home with us that he lived so long...

I wanted to say I am sorry for your loss, and I hope you had something to be grateful for in the final analysis of it, like I found in my experience

< Message edited by juliaoceania -- 8/4/2010 11:21:27 AM >


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RE: On death and dying - 8/4/2010 11:45:42 AM   
WinsomeDefiance


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I don't have the same experience with hospice. My father died of cancer, and hospice came to assist my family in his care. They didn't hasten his death. The cancer eating away at his body, did that all on its own. His mind did remain sharp, and he made all the decisions regarding his care, so it really isn't the same situation.

He died, the way he lived, with his family and friends all around him. At his funeral, nearly a dozen people stood up to give testimony of how he had helped them. From cutting wood for a single mom who had her gas shut off during winter, to filling sandbags for friends who were in threat of having their homes flooded. If I ever once thought that someone had hastened his death, merciful as it was, there would have been hell to pay.

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RE: On death and dying - 8/4/2010 11:50:14 AM   
juliaoceania


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quote:

If I ever once thought that someone had hastened his death, merciful as it was, there would have been hell to pay.


If I am in horrible pain from which I will never recover, please drug me to death.....

Thanks in advance!

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RE: On death and dying - 8/4/2010 12:07:29 PM   
kiwisub12


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My late dom died recently - from cancer, and hospice were the inhome caregivers. They DID NOT hasten his death. What they did was provide physical care - washes, assisting me to change his sheets and so on. They also provided the pain meds and other needed meds.

Because of them, i was able to have my Sir in my house until he died.

And i am a nurse, and have cared for people dying of cancer. I remember one lady vividly, she had bone cancer and fractured her femur -thigh bone - in such a position that it couldn't be fixed so she could leave the hospital. We cared for her for 6 months,  in traction and in pain - and if the medicine i gave her to control her pain made her breathing shallower, and hasten her death - then that was what it took to manage her pain.  And i feel no remorse for it.

If you talk to anyone who has cancer the primary thing they are afraid of is dying in pain - and there aren't too many of them who would think that losing a few hours and being comfortable isn't a good trade-off.

Honestly though - no-one prescribes or gives medication to "hasten" death. Its unethical, but if the treatment given for pain also hastens death, then that is the price we pay for a semblence of comfort at the end of our lives.

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RE: On death and dying - 8/4/2010 12:10:56 PM   
WinsomeDefiance


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quote:

ORIGINAL: juliaoceania

quote:

If I ever once thought that someone had hastened his death, merciful as it was, there would have been hell to pay.


If I am in horrible pain from which I will never recover, please drug me to death.....

Thanks in advance!



He definitely had his pain meds, though I don't know that there is ever enough pain medication available, to completely ease the suffering of someone dying of cancer.

I know there is a disparity between my belief that death is the ultimate form of healing, and my selfish desire to keep someone I loved and admired with me as long as possible. It was hard enough to respect my father's wishes to not have chemotherapy and other procedures that might have prolonged his life. Truth is, there was a part of me that was angry with him for not fighting harder. There's a definite dichotomy between what we know to be logical and for the best, and what our own selfish pain and heartache desires.

In our own way, we did our very best to respect and honor my father's wishes for how he wanted to live his last days. Part of the hardest thing I had to come to terms with, wasn't the grief, but the guilt over being relieved for him when he finally took his last few breaths.

I hope the same thing as you, Julia, that I be allowed a merciful death over a painful existence. All we can hope for, is that our own wishes be respected when the time comes.

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RE: On death and dying - 8/4/2010 1:10:21 PM   
StrangerThan


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quote:

ORIGINAL: kiwisub12

My late dom died recently - from cancer, and hospice were the inhome caregivers. They DID NOT hasten his death. What they did was provide physical care - washes, assisting me to change his sheets and so on. They also provided the pain meds and other needed meds.

Because of them, i was able to have my Sir in my house until he died.

And i am a nurse, and have cared for people dying of cancer. I remember one lady vividly, she had bone cancer and fractured her femur -thigh bone - in such a position that it couldn't be fixed so she could leave the hospital. We cared for her for 6 months,  in traction and in pain - and if the medicine i gave her to control her pain made her breathing shallower, and hasten her death - then that was what it took to manage her pain.  And i feel no remorse for it.

If you talk to anyone who has cancer the primary thing they are afraid of is dying in pain - and there aren't too many of them who would think that losing a few hours and being comfortable isn't a good trade-off.

Honestly though - no-one prescribes or gives medication to "hasten" death. Its unethical, but if the treatment given for pain also hastens death, then that is the price we pay for a semblence of comfort at the end of our lives.



I want to make clear that I'm not accusing hospice of anything. The care they provided in every case was impressive and we were grateful for it.

I also know there's a physical process your body goes through when death is near. Organs begin to shut down. The desire to eat, drink also withers away. sub4hire posted a list above and I've seen many of them first hand.

I guess my real question lies with the actual cause of death and the treatment plan. It was clear that death was near and unavoidable. The question in my mind is given the pain meds (morphine) in cases with my family, the decisions not to hydrate, is it actually the lack of fluid that causes death?

I know too that what I've seen in cases with my family does not represent the entirety of care nor the various care plans. My girl is also a nurse and says she has seen cases where people "came back" from hospice, so obviously there's a point in there where the decisions related to hydration and food are made, where death is deemed unavoidable.

It may sound like I'm nitpicking but at that point, it seems the treatment plan could often be the actual killer. And in there I'm wondering why some folks have a problem with the terminally ill being allowed some decision in that.


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RE: On death and dying - 8/4/2010 1:33:48 PM   
ThatDamnedPanda


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quote:

ORIGINAL: kiwisub12

Honestly though - no-one prescribes or gives medication to "hasten" death. Its unethical, but if the treatment given for pain also hastens death, then that is the price we pay for a semblence of comfort at the end of our lives.



Not necessarily true. When my father died a couple of years ago, there was no doubt at all that he was being euthanized. He knew it, we knew it, and the doctor made only a token attempt to conceal it. The purpose of the morphine/atavan drip was to kill him, as painlessly as possible. He understood it and agreed to it, repeatedly, until the doctor was satisfied that he knew exactly what he was consenting to. I could not have been more impressed with the way that it was handled, by all parties.


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RE: On death and dying - 8/4/2010 1:56:21 PM   
kiwisub12


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Wow - your fathers doctor was exceptionally brave/stupid.  I've never seen any doctor who would put his license in jephardy like that.  And i certainly don't disparage him or your family for going that route. I have no problem with assisted suicide in hopeless cases, as long as, with your dads situation, everyone is on board.

Typically, someone who is actively dying doesn't want food or water. In fact if they are semiconscious, trying to give them fluids does more harm than good - eg. their coughing reflex is suppressed and they can choke on fluids. My Sir didn't eat for several weeks - didn't want anything, nothing tasted good, and i couldn't make him  -  and the longer he lay in  bed the less he drank. He just didn't want it.
The way i saw it was if he had an iv he probably would have been alive longer - but he wouldn't have lived longer. What he was going through wasn't living - it was existing until death. He knew it and was very tired of waiting to die.
My father died very recently as well, and he went through a similar process - he stopped eating and drinking, and died relatively painlessly and comfortably. Again, he could have be kept alive a bit longer - but why? He was tired and ready to go and the family was on board with his wishes.

The place i see problems is when the patient is ready to die, and a family member isn't ready to lose them - and they can create havoc - insisting on procedures and feeding tubes and ivs, and basically making the last days of someone they love miserable. There is a lot to be said for living wills and patient rights forms.

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RE: On death and dying - 8/4/2010 1:56:28 PM   
lally2


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im absolutely certain that the comfort of the morbidly ill patient is the primary aim.  but when everything is pointing to an iminent end the withdrawal of fluids is certainly one way thats taken to 'assist' the inevitable.
i think that withdrawing fluids from a patient at end stage is probably the most humane thing to do.  why force them to linger when nature is doing its best to let them go. 

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RE: On death and dying - 8/4/2010 2:11:38 PM   
DarlingSavage


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Why deny them something to drink?  I don't understand.  I don't want anything taken from me when I'm dying.  I want to live life as fully as possible.  If I'm going to have an assisted suicide, though, I'd rather be given some IV drugs til I sleep, then enough to finish the job.  

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RE: On death and dying - 8/4/2010 2:28:55 PM   
lally2


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quote:

ORIGINAL: ThatDamnedPanda

quote:

ORIGINAL: kiwisub12

Honestly though - no-one prescribes or gives medication to "hasten" death. Its unethical, but if the treatment given for pain also hastens death, then that is the price we pay for a semblence of comfort at the end of our lives.



Not necessarily true. When my father died a couple of years ago, there was no doubt at all that he was being euthanized. He knew it, we knew it, and the doctor made only a token attempt to conceal it. The purpose of the morphine/atavan drip was to kill him, as painlessly as possible. He understood it and agreed to it, repeatedly, until the doctor was satisfied that he knew exactly what he was consenting to. I could not have been more impressed with the way that it was handled, by all parties.



i know of a doctor, who after sitting at the bedside of a man dying of emphysema who had been struggling for hours to die, stood up, told the wife that he was going to give the man something to make him more comfortable and within seconds after the injection the man died.  no one was in any doubt that the doctor facilitated death.

and then i heard of a nurse who was fired for OD'ing a dying cancer patient by upping her pain relief because the woman was in agony, screaming and begging for some relief.  im pretty sure killing the patient wasnt the intention but in doing so the nurse spared the woman unnecessary suffering.

i personally dont see any difference in either of those cases and in a way i find it hard to accept that withdrawing fluids and actively doing nothing is any less proactive than ensuring a patient can comfortably fade out by administering a drug.

its the whole 'actively doing nothing versus actively doing something' - with an end stage patient, no matter what the process, if they are beyond medical help and drugs arent helping, why on earth do we leave them to struggle to the bitter end.

i just think its barbaric to be honest.  we dont do it to our animals - in fact we would be accused of being cruel if we did.

i know, its the usual mantra, but i have to say i admired the doctor who put that man out sooner than nature was prepared to and if that woman was spared more hours of agony then it was a good job done.  had either of those patients been comatose, fluids would have been withdrawn and the end result would have been the same.

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RE: On death and dying - 8/4/2010 2:34:42 PM   
sub4hire


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The last hospice patient who died in my family was my father in law.  He was given a saline drip even in hospice.  So, not entirely sure they do take all liquids away from them.  It might be a case by case basis.

If I were dying of cancer or some other ailment.  While I was still relatively healthy I'd check out all ways to check out with the least amount of effort on my part.  I would not want hospice.  I'd know I was not going to be there just my warm body would be.  Perhaps take a drive out in the country and stick a gun in my mouth.  I don't know but I'd want to spare the family as much as possible. 

I did have an aunt who died in hospice care.  The day they allowed the family to control the morphine is the day she died.  Mercy killing of course. 

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RE: On death and dying - 8/4/2010 2:35:53 PM   
ThatDamnedPanda


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quote:

ORIGINAL: kiwisub12

Wow - your fathers doctor was exceptionally brave/stupid.  I've never seen any doctor who would put his license in jephardy like that.  And i certainly don't disparage him or your family for going that route. I have no problem with assisted suicide in hopeless cases, as long as, with your dads situation, everyone is on board.



I was very impressed with that doctor, and deeply grateful to him. I still send him a Christmas card every year in gratitude for the care he showed my father in his last days. I recall that when he discussed the issue with my dad that last Friday morning, he explained in detail exactly what was going to happen, how the drugs would work, how my dad would feel, and he would end his sentences with questions such as, "Now, you understand that once this begins, and you lose consciousness, you will not wake up - you do understand that, don't you?" My dad would answer in the affirmative, and the doctor would say, "And this is what you want, is that correct?" And again, my dad would answer in the affirmative.

When he was finished explaining it, he then said, "Now, Jim, I asked you the same question 3 different times in 3 different ways, and it sounded like I got the same answer every time. But I want to make absolutely sure I didn't misunderstand you. Are you telling me that it's your wish at this time to let this end? That you're ready to let it end, and you don't want to fight it anymore? This what you have decided you want to do?" And when my dad said yes, that's what he wanted, the doctor then explained it again, more briefly, and said his goodbyes to him.

As I said, I was very impressed with him. You're right, he was a very brave man, and a good man to do what he thought was the right thing to do. When i think of all the different ways it could have gone had my dad not chosen his doctor so wisely, I'm horrified. I think the way that doctor handled that should be the model for end-of-life counseling by physicians in this country.


_____________________________

Panda, panda, burning bright
In the forest of the night
What immortal hand or eye
Made you all black and white and roly-poly like that?


(in reply to kiwisub12)
Profile   Post #: 18
RE: On death and dying - 8/4/2010 2:41:13 PM   
JstAnotherSub


Posts: 6174
Status: offline
Sorry for all you have been through.

I cared for my mom in home hospice for about 3 weeks.  I loved the nurses.  And I think you are right, part of the process at the end is making sure they don't suffer.  That involves drugs.

Mom had liquid morphine, and I think they left me enough to put (or keep) her completely out of her misery.  I did my best to do that, and I am glad I had them to help me through it.  Since the end had to come, I am glad she was able to be at home, and I was able to help her through it.

edited to add a keep.....it kinda didn't read right.
Fuck, I got tears now-lol.  Thanks OP, I musta been in need of a cry!!!!!

Hang in there.

< Message edited by JstAnotherSub -- 8/4/2010 2:46:18 PM >


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yep

(in reply to StrangerThan)
Profile   Post #: 19
RE: On death and dying - 8/4/2010 2:41:21 PM   
kiwisub12


Posts: 4742
Joined: 1/11/2006
Status: offline
lally - nothing i have ever seen, or read or been taught said fluids are withheld to hasten death.  As a nurse, if the patient wanted something to drink, then a drink is what they got. I have seen however where a doctor won't admit that his patient was dying, and scheduled tests that involved nothing by mouth, but not very often.

I think that nothing by mouth is probably when the patient is unable to swallow, and the nurses are trying to spare them the effort of choking on fluids.

(in reply to sub4hire)
Profile   Post #: 20
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