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hizgeorgiapeach -> RE: Big Brother Insanity (11/28/2008 12:44:10 AM)
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Shiroka, I did a (very SHORT) stint as a home health aide a few years ago, between my 21 yr old handicapped daughter going into a group home and coming back to Oklahoma to deal with dad's problems. My time in that field was short because I it reminded me way to much of what life had been like for practically the entire time I'd been an adult. When my spawn was growing up, I was her sole caregiver. I was there, I did what needed to be done, and my respite weekends were grandma or great grandma volunteering to babysit so I could get a few hours of me time. I spent more than 17 years being the primary - the only, really - caregiver for someone much more severely disabled than my dad has become since his stroke. Physically, she's 21 - developmentally she'll never be more than 2 or 3 at best. That 17 year long stint as a caregiver made me strong in some ways, but decidedly weak in others. When I made the decision to put dad in a nursing home after the stroke - it wasn't, honestly, for Medical reasons. I used the medical reasons as an excuse to avoid being in that position again, because I didn't want to take on that role again. I shrank away from the idea of putting my own life on hold again, not having much (if any) social life again, and having to always find someone to stay with the person I was caregiver for just to run simple everyday errands. I still don't like it, but I've come to the realization that I can do it again, with the full knowledge that it won't be for 17 or 18 years like it was last time - he simply won't survive that long between the emphasymia and the complications/problems connected to the stroke. I've spent a lot of time today thinking - while there wasn't much else TO do other than watch TV - and came to a couple of realizations. The one thing that dad wants more than anything else at this point is to come HOME before he dies - to pass from life in his own bed, in the house that he and the woman he loved (my mother, who died several years ago) made a home, where he's comfortable and surrounded by memories. That is what would make him happy, and give him peace. He's not going to get better. No amount of medical care in the world is going to make him better. Life is terminal for everyone, and ain't none of us gettin around that fact. I owe him. I owe him for the peaceful, protected, mostly happy childhood that I enjoyed. I owe him for spurring me towards a love of knowledge, towards a better education than I might have chosen for myself without his input, for always being there when I needed him - and being there even when I didn't think I did need him. I owe him for all the times that he kept me on track, for all the grief that teenagers give their parents, for always backing my decisions even when he didn't necessarily Agree with my decisions. No, moving him back in with me isn't convenient. It won't be particularly Pleasant to me, to change my routines and have someone underfoot that I can't simply tell to go home because I'm not feeling social or need to get things done. It won't be Comfortable having to see to things like making meals for 2 instead of 1, and helping him with various things he can't Physically do for himself any longer. I'm not going to like essentially putting my life on hold (again) to take care of someone else - especially when I thought I was through with such when my older spawn finally went into a group home and I didn't have to do all of that for her. But ya know - it's all temporary - and with his health issues, quite probably VERY temporary. If I can give him a sense of peace - of completion - in coming home before he dies, surrounded by things he knows and loves...... then it's selfish of me to refuse to do that because it's Easier, and Much more Convenient, to leave him in a nursing home. My brother - my only sibling - wanted dad in the nursing home because HE didn't want to be Inconvenienced by having to take on half the responcibility for being dad's caregiver - he wanted that to either be solely my problem, or someone else's problem, as long as it was absolutely Not HIS problem. And I considered it selfish of him at the time to refuse to agree to help with the necessary tasks. If for nothing else, I can't allow Myself to be that sort of selfish .... simply because I detest blatant hipocracy, and I still loath my brother for that selfishness on his part - there's part of me that simply wants to prove to myself, again, that I'm the better person. (I know, petty and stupid and futile, but that's the human subconscious for ya at times!) That's something that I doubt I could make the APS worker understand - that if I were in this for MYSELF, if I were looking out for MY best interests before His - I would leave him where he is and let the state step in and cover the portion of the bill that we can't afford to private pay. Hell, that would only take about 20 minutes worth of filling out paperwork to accomplish - no muss, no fuss, no move, and no disruption of my life. But that's also not fair to him, not what he wants, and not what would HONESTLY be best for him when you look at all sides of things. He doesn't need the constant medical supervision. The nursing home itself has proven that, in not having him either back in the hospital or with a nurse at his bedside 24 hours a day. If he's home - it's one caregiver to one patient, a great ratio. If he's still in the nursing home, it's 2 nurses and 4 or 5 aides per wing against 40 to 60 patients per wing - definately not a great ratio. This is not to imply that the nursing home doesn't do all it can for it's residents - they're one of the best in this area, and have a great staff. But they only have so many staff members, and each of those only has so many hours that they're at work, and a lot of patients/residents to deal with each and every hour that they're on duty. At best it's impersonal, which is both depressing and frustrating for dad. They simply don't have the TIME to sit and talk with one lonely, ill man out of the 60 on that wing of lonely, ill old folks. Or to really Care what he's feeling as long as he's still visibly alive so they don't have to deal with paperwork or a critical situation. When push comes to shove, dad running out of money is simply the.... justification..... for doing what I feel is the Right thing to do anyway. If it were just money, like the APS wants to believe, then I'd leave him in the nursing home and wash my hands of the responcibilities. It would be so easy on some levels to do so. It would be (relatively) painless to do so. I just don't think I could look myself in the eye for the rest of my life if I did so.
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